Project/Committee Details
Surveillance Guidelines and Standards
In January of 1999, the NBDPN established the Surveillance Guidelines and Standards Committee (SGSC) with the primary task of developing and promoting the use of specific standards and guidelines for birth defects surveillance programs in the United States. This set of guidelines, The Guidelines for Conducting Birth Defects Surveillance, currently serves as a vital resource that state-based surveillance programs use to improve the accuracy, comparability, completeness, and timeliness of their data, to enhance the utility of their data for etiologic and health services research, and to encourage and promote the use of their data to link affected children and families with services.

SGSC members, through participation in various workgroups and sub-committees, engage in activities such as 1) exploring, developing, and enhancing technical tools to facilitate surveillance (e.g., abstractor's handbook); 2) addressing questions about or exploring issues with coding/coding systems (e.g., ICD-9/10 transition materials and webinars); and 3) developing, implementing, and evaluating data quality and data utilization standards.
Primary Contact:
Jean Paul Tanner
Contact Email: