Project/Committee Details
Surveillance Guidelines and Standards
The purpose of the of the SGSC committee is to develop and promote the use of standards and guidelines for birth defects surveillance programs in the United States and increase the quality of birth defects surveillance data. SGSC members, through participation in various workgroups and sub-committees, engage in activities such as 1) exploring, developing, and enhancing technical tools to facilitate surveillance (e.g., abstractor's handbook, Birth Defect Surveillance Guidelines); 2) addressing questions about or exploring issues with coding/coding systems (e.g., ICD-9/10 transition materials and webinars); and 3) developing, implementing, and evaluating data quality and data utilization standards.

Chairs: Nina Forestieri and Amanda St. Louis (Contact:

-Abstractor Technical Tools
-Standards Development & Evaluation
-EHR/HL7 Standards
-Surveillance Guidelines Manual
Primary Contact:
Nina Forestieri and Amanda St. Louis
Contact Email: