National Birth Defects Prevention Network - Project/Committee Information

Name:Education and Outreach
Contact:Mary Knapp <Mary.Knapp@doh.state.nj.us>

Description:
The purpose of this committee is to establish guidelines that states may utilize to assist families and their children with birth defects. Families may need assistance with educational materials describing particular birth defects, intervention strategies, services available in their state, parent support groups, appropriate medical teams specific to their child’s needs, genetic counseling, etc. Throughout the year, beginning in March, committee members hold monthly conference calls that focus on development of content for the annual Birth Defects Prevention Month educational packet that is promoted each January. Materials from participating states are compiled and evaluated by the committee to determine what is most appropriate for inclusion in the packet, as well as what additional materials are required to meet the needs of families, and of professionals caring for women of childbearing age. Such professionals are in an ideal position to promote birth defects prevention strategies. The education of health care providers regarding the etiologies of particular birth defects is an area in which many states are actively involved. Past Birth Defects Prevention Month packets have focused on neural tube defects (NTD) and folic acid, Fetal Alcohol Spectrum Disorder (FASD), cardiac defects, and oral/facial clefts. Representatives from the national office of the March of Dimes work collaboratively with the Network in this endeavor.


Details:
Mary.Knapp@doh.state.nj.us;
Lashunda.Williams@msdh.state.ms.us



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